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After reading this article that Terry Pratchett wrote http://community.livejournal.com/ohnotheydidnt/37831676.html I commented this:


[info]w3nch
2009-08-02 11:25 pm (local) (link) DeleteTrack This
I really really agree with him. If we are able to judge this for our pets so readily, why on earth is it so terrible to be able to choose this yourself?

My mum finally told me when I was 21 that I might possibly have a defective gene that only shows up after I'm 40 but could potentially leave me needing 24hour care. If I do end up having it after I'm 40 and I still have my husband and possibly a lot of children by then, my worst nightmare would be him having to give up his life to look after a drooling brainless idiot who has no knowledge that he's even doing it.

If you truely have been sentenced to a living-death I know I would want to be given the chance to go.

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[info]lespapillons
2009-08-02 11:48 pm (local) (link) Track This
Why would you have a "lot of children" if you knew you might not make it past your 40's? Isn't that rather selfish? To bring children into the world, knowing they may be motherless at a young age.

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[info]lespapillons
2009-08-02 11:49 pm (local) (link) Track This
And furthermore, you could pass it on to your kids.

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[info]w3nch
2009-08-03 12:21 am (local) (link) DeleteTrack This
For the same reason my mother had me and my sister, to just stop living all-together would defeat the purpose of being here. She didn't tell me until I got married because that meant I was ready to have kids, which also means I'm now emotionally mature to make that decision (plus of course I told my husband about it the day she told me, to give him a chance to process the information and let him make a choice whether he thought that next 20years with me would be worth the risk, and thankfully he didn't questions it at all). And my decision is to not let what 'might' happen affect me for now.

If everyone who had a high-potential for developing some sort of disease or passing it on to a family member just up and killed themselves at the age of 22 there wouldn't be many adults left in the world. I'm lucky that I have a lot of good genes too and none of the usual diseases that plague most family histories; liver/lung/heart/pancreas/organ degeneration, cancers, alzthiemers, stomach problems, joint/muscle problems, stiff or brittle bones, blood diseases like leukemia etc.

I can't say I know anyone in my family who has had a horrible existence suffering from these things but I know that there is a 50% chance I could end up having one particular disease that I don't have to worry about starting to develop (if at all) at 40. I think it's kind of comforting to know what could go wrong with my body. (Not including terrible accidents of course, like being run over or whatnot) At least I know a lot more about myself than most who don't think about it at all until it's too late.

I could pass it onto my kids but I think they would like to be born and to experience a long happy life (touch wood) rather than never be able to make that choice. Plus who knows what they might have invented in 40 years time when it would be their time to find out.

Sorry for the long reply, I haven't spoken to many people about it so it's actually kind of great that you provoked this response from me, it 100% confirms what I was only 90% sure of before.

unremarkable July

  • Jul. 29th, 2008 at 11:38 PM









Then I had a lovely meal with a lovely friend.





 
The end.

book meme - stolen from dirtylaundry

  • Jul. 1st, 2008 at 9:36 PM

"The Big Read reckons that the average adult has only read 6 of the top 100 books they've printed. Well let's see."
1) Look at the list and bold those you have read.
2) Italicise those you intend to read.
3) Underline the books you LOVE.
4) Reprint this list in your own LJ so we can try and track down these people who've read 6 and force books upon them



happy birthday johnny depp

  • Jun. 9th, 2007 at 11:40 PM




Today has been mostly lovely.

Kev and I met up with Colin, Mark and Jill at Frankensteins for lunch. I was a bit late in leaving so it meant that we got to the pub just after 1pm and we had to wait around on Jill coming, she arrived 15minutes after we did so we were only ready to order at 1.30pm. This all meant I couldn't have any lunch because I wanted to be early for Dr. Sketchy's (this awesome life-drawing class except with sexy burlesque ladies) which started at 2pm.

I was really nervous about going on my own but it was awesome!

My right hand is still pretty numb so it was like drawing with my left hand and I always worry the model will take it as a personal insult if my drawings are crap :(


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viewings

  • May. 30th, 2007 at 11:00 PM




Do come in, let me show you around.

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strange lights

  • May. 21st, 2007 at 11:49 PM



I woke up shockingly late today. 3.30pm!

Kev came in when I was cooking tea (paella) and had brought me some flowers. They are all pink and green and lovely :)

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p.s. I'm loving the little square face for 'curious'!

catz r kool

  • May. 20th, 2007 at 11:14 PM



They really are.

Kev and I went to see them again today but before heading through to Polmont we stopped up town. I couldn't be arsed going along with him to pick up his glasses so I stayed in the car.

Apparently todays pictures are mostly of the sky or cats.

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mini gallery!

  • May. 16th, 2007 at 11:22 PM



Today Kev and his brother have been ripping up the carpets so that the floor will be clear for the carpet guys tomorrow.

Instead of helping hindering them I got to putting my prints in their frames.

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ikea!

  • May. 15th, 2007 at 11:08 PM



What does anyone go to Ikea for? Is it for furniture that is cost effective AND provides amusement by having names like PLOP and JOBBI?

NO.

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bit later than I had hoped

  • May. 14th, 2007 at 11:29 PM





Today I had to go to the solicitors to provide ID before we can start the ball rolling on getting Kev's flat sold. So I went there on the bus. All buses are all tartan from top to bottom in Scotland, fact.

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heh

  • Apr. 9th, 2007 at 5:06 AM

glasses

in Opium

drunken 'dangerous' fun with glasses

they wouldn't let me pile them higher but I bet I could have :)

Marshmallow cake

  • Mar. 31st, 2007 at 1:59 PM

I made these awesome rice-crispy things the other day:

marshmallowcake i

+4 )

Tea Party

  • Nov. 30th, 2006 at 12:53 AM


cup i cup ii

Joke Jape Jest

  • Jun. 1st, 2006 at 3:40 PM

I made up a joke the other day, a few years too late but:

Did you hear the one about the twin towers?

boom boom!




Oh and I made Eva's Cookies but I didn't have the chocolate or the banana's... so they lacked in that sense but they were still really nice! I think I did something wrong as they didn't keep their star shapes and ended up as one big baking-tray sized cookie, hehe.

Scarlett wosshername

  • May. 27th, 2006 at 8:01 PM

She has big lips, that means she's instantly the best person to have as a lipstick model/representative? Err no. Every time I see her I can't differentiate her from a child with spaghetti on it's face:


???



She's much less cute.

Pie au Paris!

  • May. 3rd, 2006 at 12:49 AM



Hehe.

p.s. I just bought a corset I've been lusting after for ages AND it was on sale, how amazing is that!!?!

Hehe

  • Jan. 7th, 2006 at 11:44 PM

Last week I was being incredibly lazy and my eyebrows ended up somewhat bushier than normal. I've only just managed to get them sheared back down to a normal size. :\ Not great.

Talking of eyebrow:

guinnessnoeyebrow

Notice anything wrong with that picture?

Yeah, the daft bugger's have been fighting rather a lot which results in them biting off each others whiskers. So, now Guinness has no right-eyebrow-whiskers! At first I accused Kev of snipping them off but he pleaded innocent and then we caught them in the act.



Oh and Kev was telling me today to stop saying "That's your favourite" to lame things on TV (you know, the immature thing you used to do with your friends on the bus, i.e. "That's your dad" *points to ugly old man* and then the friend is all embarrassed and protests "No it's not!"). Because I had said it in front of her in reference to Bon Jo(bbies)vi and now she calls him up to let him know whenever they're on VH1!

I found this immensely amusing.

potusa

  • Dec. 16th, 2005 at 4:35 AM

meow meow meowmeowmeowmeow!